If I get dementia . . .

If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things.

  1. If I get dementia, I want my friends and family to embrace my reality. Just go with it & have fun!
  2. If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
  3. If I get dementia, don’t argue with me about what is true for me versus what is true for you.
  4. If I get dementia, and I am not sure who you are, do not take it personally. My timeline is confusing to me, and I may not even recognize my own reflection in the mirror.
  5. If I get dementia, and can no longer use utensils, do not start feeding me. Instead, switch me to a finger-food diet, and see if I can still feed myself first.
  6. If I get dementia and I am sad or anxious, hold my hand and listen. Do not tell me that my feelings are unfounded. Sing or dance with me to distract and make me laugh.
  7. If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am. Don’t talk to me like I’m stupid, and don’t let anyone else do it.
  8. If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to do some of it.
  9. If I get dementia, ask me to tell you a story from my past, even if it’s the same one you always hear.
  10. If I get dementia and I become agitated, take the time to figure out what is bothering me. Be patient. I’m probably frustrated because I can’t express myself, I’ve lost my independence, I’m not feeling well, or I’m feeling fearful or anxious.
  11. If I get dementia, treat me the way that you would want to be treated.
  12. If I get dementia, make sure that there are plenty of snacks for me. Even now, if I don’t eat, I get hungry, and if I have dementia, I may have trouble explaining what I need. P.S. ~ I love sweet treats.
  13. If I get dementia, don’t talk about me as if I’m not in the room. Don’t let anyone else do it.
  14. If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live.
  15. If I get dementia and live in a dementia care community, please visit me often.
  16. If I get dementia, don’t act frustrated if I mix up names, events, or places. Take a deep breath. It’s not my fault. I’m trying.
  17. If I get dementia, make sure I always have my favorite music playing within earshot. Turn my favorite show on.
  18. If I get dementia, and I like to pick up items and carry them around, help me return those items to their original place. Don’t accuse me of stealing stuff.
  19. If I get dementia, don’t exclude me from parties and family gatherings. I need stimulation, whether I realize it or not.
  20. If I get dementia, know I still like receiving hugs, kisses, and touches. As a matter of fact, I need it.
  21. If I get dementia, remember that I am still the person you know and love in this shell. I am still those memories. I still love you.

In tribute to those who have lost someone they know or are battling Dementia/Alzheimer’s.💞💜